Educause Security Discussion mailing list archives
Re: Protecting genetic data sets
From: Nick Semenkovich <nick () SEMENKOVICH COM>
Date: Wed, 29 Apr 2015 14:18:39 -0500
Most policies in this area are pretty dated. Anecdotally, a few institutions are treating de-identified (but comprehensive, e.g. WGS/exome*) human data as equivalent to surname + gender. See this well publicized paper from the Whitehead: http://www.sciencemag.org/content/339/6117/321.full tl;dr: Isolated Y-chromosome SNP data lets you determine a person's last name w/i some confidence interval. - Nick * It's messy to define a good policy here, since data spans a crazy range from WGS/exome to SNP / single gene / transcriptome / miRNA ... On Tue, Apr 28, 2015 at 8:07 PM, Allan Williams <allan.williams () anu edu au> wrote:
G’day, I’m currently looking for standards/procedures for handing human genomic data. I’ve seen the guidelines that have been published by the sanger institute on the sharing of human genomic data ( https://www.sanger.ac.uk/datasharing/assets/wtsi_humgendatasecurity_policy.pdf ) and was wondering if anybody else had something similar that they could share. For those who may already be undertaking this type of work at their institution - is there any standard encryption requirements or standard in use for sharing datasets? Thanks, Allan -- Allan Williams Associate Director (Services and Technologies) National Computational Infrastructure The Australian National University 143 Ward Road Acton ACT 2601 Australia P: +61-2-6125 8404 E: Allan.Williams () anu edu au W: www.nci.org.au
-- Nick Semenkovich Laboratory of Dr. Jeffrey I. Gordon Medical Scientist Training Program School of Medicine Washington University in St. Louis https://nick.semenkovich.com/
Current thread:
- Protecting genetic data sets Allan Williams (Apr 28)
- Re: Protecting genetic data sets Nick Semenkovich (Apr 29)