PHR's, Get 'em While They're Hot

[Dave Farber <dave () farber net>]

Begin forwarded message:

> From: "Brock N. Meeks" <bnmeeks () verizon net>
> Date: July 26, 2010 9:02:46 PM EDT
> To: dave () farber net
> Subject: PHR's, Get 'em While They're Hot

> Dave,  for the IP list if you so choose.  
>
> Personal Health Records —PHRs— we are on the cusp of these electronic documents becoming as common as an iPhone 4’s 
> dropped calls... But there are no overarching privacy and security guidelines for these documents that will carry our 
> most sensitive health information.  The promise of PHRs is big, but if consumers don’t or can’t trust that their PHRs 
> will be safe, that promise will never materialize.  
>
> CDT’s Health Privacy Project has just released a report outlining the steps needed to ensure consumer trust in PHRs 
> through a mix of legal requirements and industry adherence to a set of “best practices.”  
>
> The requirements called for in this report, are so common sense, for example, “require consumer consent to collect, 
> use and maintain data in a PHR; prohibit compelled use of a PHR, and so on, yet they are no where to be found... Yet.
>
> A copy of the report is online here: http://www.cdt.org/iSN
>
> Cheers -- Brock



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